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National FH events 2018

Around the world atherosclerosis societies, networks and FH patient organisations are holding events and activities to raise awareness of FH among the general public and healthcare professionals. The more people are aware of FH, the more likely we are to get FH onto the public health agenda.

We have listed some of the local and national events taking place before, during and after FH-week, September 19-25.

Is there an FH-related event happening near your?
Let us know, and we'll post it here. Send details to info@eas-fhsc.org.

FH activities Worldwide

 

Date
Activity
Location
Contact details:
 July
14

National Russian Familial Hypercholesterolemia

Press release-A dangerous heritage – to find and neutralize.

National Russian Familial Hypercholesterolemia is conducted to draw the attention of the power institutions, doctors and wider public to the issue, and to inform them on the novel methods of the prevention, diagnostics, and the treatment of the disease, as well as to bring up to date the hot questions risen in front of the National Public Health regarding the medical care for the patients suffering from FH.

Press-conference on “The family history against the ‘juvenile’ myocardial infarction” associated with the National Familial Hypercholesterolemia (FH) Day, broadcasted in the State news network TASS on 14th of July.

RUSSIA 

National Russian Familial Hypercholesterolemia Day is introduced under the initiative of the Russian National Atherosclerosis Society.

The first events were organized in 2016 in Sanct-Peterburg as the part of International Congress on Atherosclerosis dedicated to the memory of NN Anichkov.

 August -
September

Short write-up on FH research conducted in Singapore
E-newletter is sent out to NHG- one of the three public healthcare clusters in Singapore. Readership includes healthcare professionals from 3 acute hospitals, 1 community hospital, 3 specialized institutes and 6 primary care clinics

E-newsletter to NHG- a public  healthcare cluster SINGAPORE

https://www.research.nhg.com.sg/
wps/wcm/connect/
95c0538046a5a3ca8f65ef41b1c5e59b/
Catalyst+34.pdf?MOD=AJPERES
(page 5)

A/P Tavintharan Subramaniam
subramaniam.tavintharan@ktph.com.sg

September 2018 Promotion through social media-Paid campaign in Facebook Ads  Facebook
GREECE
Hellenic Atherosclerosis Society
Mrs Aggeliki Moatsou info@atherosclerosis.gr
 September
2018

FH focus on Hellenic Atherosclerosis Society web

 

Internet - Hellenic Atherosclerosis Society website
GREECE

Hellenic Atherosclerosis Society
www.hellasfh.gr,
Mrs Aggeliki Moatsou info@atherosclerosis.gr
 September
1
Screenings: Public awareness, Health Care / Patients, Public Budapest Városmajor Clinic HUNGARY SZIVSN National Patient Organization Bernáth-Lukács Zsuzsa
September
1
Article on FH in the ‘VITA’ magazine VITA
Lifestyle/Health magazine
GREECE
Hellenic Atherosclerosis Society
Mrs Aggeliki Moatsou info@atherosclerosis.gr
September
1, 8,
17-20
Public awareness, education in CV preven-tion and risks of untreated FH, blood cholesterol measurement, lectures, nutritional counselling  Prague and other cities in CZECH REPUBLIC  www.diagnozafh.cz, www.facebook.com/diagnozaFH, Instag-ram Diagnoza FH
Contact person:
Kristyna Cillikova, Di-agnoza FH vice-chair, komunikace@athero.cz

September
14

Annual Russian National Atherosclerosis Society (RNAS Conference Domina Hotel
Novosibirsk,
RUSSIA
https://noatero.ru/en
Marat Ezhov, President of RNAS
 September
15

Mona Lisa Campaign
FH 
education campaign, internet, posters, flyers, etc

Budapest, HUNGARY 

SZIVSN National Patient Organization Semmelweis University Városmajor Clinic 
Bernáth-Lukács Zsuzsa

September
15 - 16


The project CaRe High
– Cascade Screening and Registry for High Cholesterol participates in an exhibition for health, prevention & medicine  to promote its public awareness campaign about FH in Germany.

 Gesundheitsmesse
Ingelheim am Rhein, GERMANY

CaRe High – Cascade Screening and Registry for High Cholesterol in cooperation with the D-A-CH Gesellschaft Prävention von Herz-Kreislauf-Erkrankungen e.V. (German, Austrian and Swiss Society for prevention of cardiovascular diseases) Dr. rer. nat. Nina Schmidt (project manager)
Nina.schmidt@carehigh.de


September
2018

2 Articles about FH – one for laypersons (circulation: 100,000) and one for MDs and pharmacists in the two Austrian pharmacy magazines “DA – Deine Apotheke” and “ÖAZ – Österreichische Apothekerzeitung” All pharmacies across AUSTRIA GabrieFHchol Austria – Patient Organization for Patients with Familial Hypercholesterolemia and other genetic lipid disorders,
FH Registry & Cascade Screening of the Austrian Atherosclerosis Society
le Hanauer-Mader, g.hanauer@aon.at, www.fhchol.at

September
18 
Regional TV broadcast on FH Debrecen,
HUNGARY
Hungarian Atherosclerosis Society
Prof. György Paragh (paragh@belklinika.com)
September 18 FH patients’ meeting Vienna
FH patients and experts gathering, exchange of information, eduational initiative

Cafe Museum, 1010 Vienna,
AUSTRIA

FHchol Austria g.hanauer@aon.at, info@fhchol.at
September
19 
University paper Information for lay population and university members  Debrecen
HUNGARY
Prof. György Paragh paragh@belklinika.com
September 19 Newsletter, basic information regarding FH, clinical characteristics, diagnostic tools. Mar del Plata,
ARGENTINA
FASTA University, School of Medicine
Professor Pablo Corral http://www.ufasta.edu.ar/academico/ciencias-medicas/
September
19
Meeting with hypercholesterolemia patients, Educative lecture Republican Specialized Centre of Cardiology under UZBEKISTAN Ministry of Health Republican Specialized Centre of Cardiology under Uzbekistan Ministry of Health (RSMRPCC)
Shek A.B.
Alieva R.B.
Khashimov
S.U.
Nizamov U.E.
September
19, 22 
Local radio, TV and newspaper Székesfehérvár,
HUNGARY 
Dr. István Reiber board member of the Hungarian Atherosclerosis Society
ireiber@mail.fmkorhaz.hu
September
19-24
IAS-OSLA campaign
Raise the rate of public awareness about FH and showing the importance of cascade screening for affected families

Al-Diwaniya teaching hospital
IRAQ
Iraqi lipid clinics network in cooperation with Ministry of health in Iraq
Facebook page of the organizer ( president of the Iraqi lipid clinics network ( Mutaz Alkhnifsawi)
Page : Mutaz Alsabah
Dr_mutaz@hotmail.com
September
19-24
Information coverage of program on lipid storage disease, preventive health care, balanced nutrition

Website of of RSMRPCC
UZBEKISTAN

 Shek A.B.
Ulrazmetow H.
Khashimov
S.U
September 19-24 Preventive measures for CVD. Do you know the level of cholesterol in your blood test? Publishing of information flyers
UZBEKISTAN
Alieva R.B
September
20 
Irish Lipid Network quarterly meeting for Irish Lipid Network members Tallaght University hospital
Dublin,
IRELAND
 
ALMAR Centre Tallaght,
Professor V. Maher
Ruth Agar
Lipid Nurse Manager
September
20 
Local radio broadcast on FH Information for lay population about FH  Miskolc
HUNGARY
Dr. Gergely Nagy, board member of the Hungarian Atherosclerosis Society
Dr. Gergely Nagy ngergely@hotmail.com 
September
20 
Postgraduate course for GP's, healt care providers Székesfehérvár,
HUNGARY 
Dr. István Reiber board member of the Hungarian Atherosclerosis Society, ireiber@mail.fmkorhaz.hu
September
20
Meeting with senior classes of the secondary school No. 17
Populous lecture about the role of lipid metabolism, right living, demand for health enhancing physical activity and cardio- vascular diseases risk factor control
Secondary school No.17 UZBEKISTAN RSCC and school administration
Shek A.B.
Alieva R.B.
Shukiriyants
M.B.

September
20

Familial Hypercholesterolemia Awarness and Management symposium Newton Amphitheatre
University of Nicosia
CYPRUS 
The Cyprus atherosclerosis Societ and the University of Nicosa Medical School
Contact: 22841500|25002131
September
20

Meeting with students of Medical Institute - 6th course of study.
Lecture: "Preventive care and early diagnosis of Dyslipidaemia in Child care clinic patients"

Clinical unit of Medical AInstitute, UZBEKISTAN

RSCC Medical Institute
Shek A.B.
Alieva R.B.
Nizamov U.E
Daminova
M.N.

September
21 

Educational meeting for patients and families with Familial Hypercholesterolemia
See programme

UIEM (Unidad de Investigación en Enfermedades Metabolicas), National Institute of Medical Sciences and Nutrition (INCMNSZ), Mexico City,
MEXICO 
 Dr Carlos Aguilar-Salinas
September
21 
"Challenging Cases In Clinical Lipidology"
Irish Lipid Network members.

ALMAR (Advanced Lipid Management And Research Centre) Tallaght hospital,Tallaght University hospital Dublin,
IRELAND 

Professor V. Maher
To register:
ruth.agar@tuh.ie
September
21
Session at Argentine Annual Lipid Society Meeting. Example of FH registry initiative  Buenos Aires,
ARGENTINA
Argentine Lipids Society
http://www.lipidos.org.ar
September
24-30 
FH patient testimonies patient stories on the patient organization Home page During FH Week: daily one new patient story shared www.facebook.com/szivsn www.szivsn.hu

I

Internet: www.szivsn.hu, www.facebook.com/szivsn
HUNGARY 

SZIVSN National Patient Organization
Bernáth-Lukács Zsuzsa
dr.Gesztes Ákos
September
24 

Celebrating FH Awareness Day in Al-Diwaniya, 
Lecture about FH
Broadcast by a TV team.

Al-Diwaniya
IRAQ 
The Iraq Lipid Clinic Network
Mutaz . R. Al-Khnifsawi
General cardiologist
President of the Iraqi lipid clinics network
www.dr-mutazclinic.com

September
24

Newsletter to a database of approximately 15,000 physicians  E-mail
GREECE
Hellenic Atherosclerosis Society
Mrs Aggeliki Moatsou info@atherosclerosis.gr
September
24
Press release Medical press
GREECE
Hellenic Atherosclerosis Society
Mrs Aggeliki Moatsou info@atherosclerosis.gr

 Septemb

er 24

FH awareness day - the general public was invited to listen to the talk about FH ( Prevalence , risk , signs of the disease, the importance of early diagnosis and cascade screening of the family ) in a simplified native language that included photos and short videos illustrating the impact of the problem.

This event was followed by Radio broadcast in the local radio station of the city and published on social media reaching out to a large audience in Iraq.

Al-Diwaniya city
IRAQ
 Iraq lipid clinics network in cooperation with Ministry of health in Iraq

Al-Diwaniya teaching hospital
IRAQ.
September
25

Press conference + Meet the Chef activity - cook-ing of fine food for healthy vessels

 
Prague
CZECH REPUBLIC

www.diagnozafh.cz, www.facebook.com/diagnozaFH, Instag-ram Diagnoza FH
Contact person:
Kristyna Cillikova, Di-agnoza FH vice-chair, komunikace@athero.cz
September 25

FH patients’ meeting Linz, Upper Austria 
FH patients and experts gathering, exchange of information, eduational initiative

Cafe Schillerpark, Linz, Upper AUSTRIA

FHcholAustria
info@fhchol.at, g.hanauer@aon.at

September 25 - 
October

Applying successfully detecting FH index cases in provincial hospital Viet Nam: new FH index cases have been detected by Dr Thi Diem NGUYEN and Dr Van Dung LE in provincial areas. This event marked extension of FH detecting in all three areas of Viet Nam  Middle area of Vietnam and Mekong Delta VIETNAM Vietnam National Heart Institute Bach Mai Hospital and Can Tho University and Ha Tinh General Hospital
1. Dr Thi Diem NGUYEN. Can Tho University Viet Nam, Tel +84 949256715.
2. Dr Van Dung LE. Ha Tinh General Hospital Vietnam, tel +84 912303177
September
27
 
 Day of Familial Hypercholesterolemia Joint meeting of the European Atherosclerosis Society, UKRANIAN Atherosclerosis Society and POLISH Lipid Association  Professor Olena Mitchenko,
Co-Chairman of the Ukrainian Atherosclerosis Society.
September
28 
Postgraduate course for health care providers and cardiologists Pécs,
HUNGARY 
Richter Pharmaceutical Company
Együd, Ferenc; f.egyud@richter.hu

 September 29 

World Heart Day
Annual community outreach event
• Exhibition booth for FH.
• Distribution of items (pens, files, towels etc) with short message regarding FH printed.
• Distribution of information pamphlets
• Education to the public to create public awareness regarding FH with posters
• Conducting survey on public knowledge and awareness on FH

Toa Payoh HDB Hub, SINGAPORE

  http://www.myheart.org.sg/article/community-education/national-heart-week--world-heart-day/about/111

A/P Tavintharan Subramaniam
subramaniam.tavintharan@ktph.com.sg

Dr Sharon Pek
pek.sharon.lt@ktph.com.sg
 September
30
Interactive forum, Public education Budapest,
HUNGARY 
Hungarian Society of Cardiology
WWW.SENSATIONEVENT.HU, ilkahazi.renata@sensationevent.hu
September
30 
Day of our Hearts
SZÍVSN
Educational Labyrinth: Education on FH and heart diseases
Millenáris Park,
Budapest,
HUNGARY 
SZIVSN National Patient Organization Hungarian Cardiology Society
Hungarian National Heart Fund
Bernáth-Lukács Zsuzsa
EFPIA 2017 Health Collaboration Guide
 October
1 - 5
The project CaRe High – Cascade Screening and Registry for High Cholesterol participates in the local health awareness week in Mannheim to promote its public awareness campaign about FH in Germany.

Gesundheitswoche

Mannheim,
GERMANY

CaRe High – Cascade Screening and Registry for High Cholesterol in cooperation with the D-A-CH Gesellschaft Prävention von Herz-Kreislauf-Erkrankungen e.V. (German, Austrian and Swiss Society for prevention of cardiovascular diseases)
Dr. rer. nat. Nina Schmidt (project manager)
Nina.schmidt@carehigh.de

October 2018 -
February 2019


 “Screening for FH and Winning the Prize” during the Annual Health Examination
 October 2018 - December 2018 at Chulalongkorn University
January 2019 - February 2019 at King Chulalongkorn Memorial Hospital
THAILAND
Chulalongkorn University and King Chulalongkorn Memorial Hospital
thaifhregistry@gmail.com
www.facebook.com/thaifhnetwork
October
2-3

International Symposium “Medicine on the Silk Way” Health care and educational activities

Bishkek, KYRGYZSTAN

Lipids Working Group of the Kyrgyz Society of Cardiology Erkin Mirrakhimov
erkmirr@gmail.com


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