September
7-10
|
The Homozygous Familial Hypercholesterolemia Educational Forum was held in conjunction with the 12th Annual ICORD Meeting and the 6th China Rare Disease Summit. |
Beijing, China |
International Association of Rare and Orphanics (ICORD), Rare Disease Development Center (CORD), Peking Union Medical College Hospital (PUMCH) and Beijing Anzhen Hospital, Capital Medical University
Jie Lin M.D.,PhD
Email:jielinaz@ccmu.edu.cn
|
September 13-29
|
Displaying of Awareness Poster and web banner |
Clinical Research Unit Research Gallery and visitor lifts
|
Khoo Teck Puat Hospital
Cholesterol.info@alexandrahealth.com.sg
pek.sharon.lt@alexandrahealth.com.sg
lin.michelle.x@alexandrahealth.com.sg
Hotline: +65 6602 2346 |
| September 13-29 |
Displaying of Awareness Poster |
Singapore Heart Foundation website |
Singapore Heart Foundation
Cholesterol.info@alexandrahealth.com.sg
pek.sharon.lt@alexandrahealth.com.sg
lin.michelle.x@alexandrahealth.com.sg
Hotline: +65 6602 2346 |
| September 13-29 |
Awareness pamphlet in the clinic for patients |
Khoo Teck Puat Hospital |
Khoo Teck Puat Hospital
Cholesterol.info@alexandrahealth.com.sg
pek.sharon.lt@alexandrahealth.com.sg
lin.michelle.x@alexandrahealth.com.sg
Hotline: +65 6602 2346 |
| September 15 |
The NRDRS -HOFH Registry was launched and relevant database was established |
Online, invited only |
National Rare Disease Registry System of China
Jie Lin M.D.,PhD
Beijing Anzhen Hospital
Capital Medical University
No.2, Anzhen Road
Chaoyang District
Beijing 100029
Email:jielinaz@ccmu.edu.cn
|
September
17
|
Educational workshop for FH management targeted towards GPs, dietitians, public health nurses, pharmacist, laboratory medical technologist |
Fukuoka, Japan
|
Japan Atherosclerosis Society(JAS),
with the funding support from Aegerion Pharmaceuticals
and Sanofi
JAS secretariat email:
jas@j-athero.or.jp
|
| September 18-24 |
FH-Awareness Week
Activities cover nationwide and local press releases, interviews with key opinion leaders, meetings with patient organizations, media appearances, informational/scientific paper authoring in Hungarian professional journals, spreading information about our FH register website for professionals and lay people. |
Various venues across Hungary including Budapest, Debrecen, Székesfehérvár, Gyula, Pécs. |
Hungarian Atherosclerosis Society
Prof. György Paragh, President, Hungarian Atherosclerosis Society
Prof. István Karádi,Vice-President, Hungarian Atherosclerosis Society
Mariann Harangi, Secretary, Hungarian Atherosclerosis Society
István Reiber, Associate Professor (Hon.),
Péter Fülöp, Hungary; Advisor in International Affairs, Hungarian Atherosclerosis Society |
| September 18-22 |
FH awareness week:
Lipid profile measurement, lectures, nutritional counselling and promoting materials distribution |
Brno, Hradec Kralove, Karlovy Vary |
Diagnoza FH (patient organization),
Czech MedPed, Czech Atherosclerosis Society, Nutrition&nutritional care section
www.athero.cz; www.facebook.com/diagnozaFH (in Czech); @kristynacillik (twitter in English)
Kristýna Čillíková; komunikace@athero.cz
|
| September 18-October 18 |
Frequent radio spot targeted towards the general public, describing the causes and severity of the FH disease
(supported by social media and online information: https://www.hellasfh.gr/leaflet-fh )
|
Greece |
Hellenic Atherosclerosis Society
Email: hellasfh@atherosclerosis.gr
Contact person:
Evangelos Liberopoulos
Twitter | Facebook | LinkedIn
|
| September 18-24 |
Information about FH on web page of Cantonal hospital Zenica, pressreleases on FH, emails to doctors via medical assembly, information about FH on state- and local TV network. |
|
Cantonal Hospital Zenica
Prof Belma Pojskic |
|
Awareness Week
September
18-24
|
Daily newsletters on FH related topics to more than 8500 contacts within the field of atherosclerosis and via social media |
FH Studies Collaboration FH-Week
FH events Worldwide |
European Atherosclerosis Society
FH Studies Collaboration
www.eas-society.org/fhsc |
| September 19 |
Press conference
with invited journalists, mainly of the medical field
(supported by social media and online information: https://www.hellasfh.gr/leaflet-fh)
|
Athens Plaza Hotel, Athens, Greece |
Hellenic Atherosclerosis Society
Email: hellasfh@atherosclerosis.gr
Contact person:
Evangelos Liberopoulos
Twitter | Facebook | LinkedIn
|
| September 20 - October 01 |
Information about FH and Dutch Lipid Clinic Network Score
Focus on LDL-cholesterol as the most neglected CVD risk factor |
Sinaia
(Venue for Annual Cardiology Congress) 20-24 September
and
in 10 major cities (e.g Bucharest, Timisoara, Iasi…)
|
Societatea Romana de Cardiologi
Dan Gaita
Dragos Vinereanu
|
| September 20-22 |
Information about FH to delegates at the Ukrainian National Congress of Cardiology (ca. 3000 delegates).
|
Wide coverage of the Congresses and issues discussed in the media- newspapers, magazines, TV |
Ukrainian Association of Cardiology |
| September 21 |
Joint meeting of the European Atherosclerosis Society, Ukrainian Atherosclerosis Society and Polish Lipid Association with a detailed discussion of the “Current issues of prevalence, diagnosis and treatment of FH”. |
NSC "Olympic", Velyka Vasylkivska Street, 55, Kyiv, Ukraine |
Ukrainian Society of Atherosclerosis and the Ukrainian Association of Cardiology
Contact person:
Co-chairman of the Ukrainian Atheroslerosis Society, prof. Olena Mitchenko,
olenamitchenko54@gmail.com
National Scientific Center "M.D. Strazhesko Institute of Cardiology" ,
MAS OF UKRAINE
http://www.strazhesko.org.ua/en
|
| September 22 (FH Awareness Day Austria) |
Free cholesterol tests to the public between 09:00-17:00
FH patients and experts will be available for questions and answers |
THE MALL, Landstrasser Hauptstrasse 1B, 1030 Vienna |
The Austrian FH patient organization FHchol Austria
www.fhchol.at |
| September 23 |
Educational workshop for FH management targeted towards GPs, dietitians, public health nurses, pharmacist, laboratory medical technologist |
Tokyo, Japan |
Japan Atherosclerosis Society(JAS) with the funding support from Aegerion Pharmaceuticals, Astellas AMGEN biopharma
JAS secretariat email:
jas@j-athero.or.jp
|
| September 26 |
Press conference |
Prague, Czech Republic |
Czech Atherosclerosis Society, Diagnoza FH (patient organization)
Kristýna Čillíková; komunikace@athero.cz
|
| September 28 |
World Heart Day event
Free cholesterol tests to the general public and information about FH 12:00-18:00 |
Vienna City Hall, 1010 Vienna
|
Austrian FH Registry & Screening and the FH patient organization FHchol Austria
www.herztag.at
|
| September 29 |
World Heart Day
Joined press release by about prevention at early age. Emphasizing the need to identify FH in childhood and on the therapeutic education of children who have been identified with familial hypercholesterolemia |
|
BELCHOL and Belgian Cardiology League |
| September 25-29 |
Heart UK Brochures (Three brochures for young kids, older and growing up) translated into French and Dutch and other materials from BELCHOL (leaflets for public awareness on FH, publications and caetera) |
Awareness points, mainly in hospital and outpatients clinic |
BELCHOL and Belgian Cardiology League |
| September 25-29 |
Videos and press releases to inform the general public via BELCHOL website and on Facebook and other social media networks. |
Online |
BELCHOL and Belgian Cardiology League with the support of Amgen.
http://www.lipidclub.be
|
| October 01 |
Educational workshop for FH management targeted towards GPs, dietitians, public health nurses, pharmacist, laboratory medical technologist |
Nagoya, Japan |
Japan Atherosclerosis Society(JAS) with the funding support from Aegerion Pharmaceuticals, Astellas AMGEN biopharma
JAS secretariat email:
jas@j-athero.or.jp
|
| October 04 |
Lectures for physicians of South Region of Kyrgystan on FH (diagnostics and treatment) |
Bishkek city, Kyrgyzstan |
Kyrgyz Society of Cardiology
Email: Erkin Mirrakhimov |
| October 22 |
Lectures for physicians of South Region of Kyrgystan on FH (diagnostics and treatment) |
Osh city, Kyrgyzstan |
Kyrgyz Society of Cardiology
Email: Erkin Mirrakhimov
|
| October 29 |
Educational workshop for FH management targeted towards GPs, dietitians, public health nurses, pharmacist, laboratory medical technologist |
Osaka, Japan |
Japan Atherosclerosis Society(JAS) with the funding support from Aegerion Pharmaceuticals, MSD and Bayer
JAS secretariat email:
jas@j-athero.or.jp
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