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FHSC Objectives

The objectives of the FH Studies Collaboration are:

  1. To establish an international registry of observational studies on FH with a view to gaining an in-depth understanding of the contemporary burden of both homozygous FH (HoFH) and heterozygous FH (HeFH): how patients are managed, treatments, impediments, long-term risks, impact of patient-specific and societal factors, gene-drug interactions and screening.
  2. To disseminate the information gained from the above-mentioned activities to an international audience including physicians and other healthcare professionals with a view to sensitising them to the contemporary burden of FH, encouraging open discussion on the management of FH patients, promoting a uniform, evidence-based standard of care, and encouraging primary care physicians in particular to contribute actively to research.
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