This website uses cookies to store information on your computer. Some of these cookies are used for visitor analysis, others are essential to making our site function properly and improve the user experience. By using this site, you consent to the placement of these cookies. Click Accept to consent and dismiss this message or Deny to leave this website. Read our Privacy Statement for more.
Sign In   |   Register
FH Week 2019

Through the power of a global network of lipid clinics and the largest population FH dataset ever assembled, FH Studies Collaboration (FHSC) is the engine room that will deliver quality metrics, informing measures addressing the gaps in detection, treatment and outcomes, and driving improvement in standards of care for FH patients globally.

With our 2019 FH Week campaign we update on the FHSC’s activities and progress, as well as joining with the FH community to raise awareness of the condition on FH Awareness day, September 24th.

FH Week - collecting and understanding the data

The EAS FH Studies Collaboration (EAS FHSC) was launched in 2015. Since then, investigators from 69 countries worldwide have joined the collaboration and over 61,000 cases have been entered in the FHSC global registry (including over 8,500 children). FH week 2018 saw the publication of the FHSC paper on an overview of the FH management and care in 63 countries, and more recently, presentations of analyses of the registry data have been made at a late-breaking science session at ESC 2020 Paris, while the publication of the first analyses is currently in preparation. These and subsequent analyses will inform scientific discussion about effective global action for early detection of FH, and effective management and treatment of FH patients. .

Read more about the latest results
and listen to interviews about the data >>

How the registry is set up and what we expect to learn >>

A global network with local knowledge

Having established the FHSC network of over 80 national coordinating centres in order to collect the data, and with data harmonisation and analysis ongoing, EAS FHSC's plan is to work with the network of national coordinators in individual countries to implement treatment strategies according to specific country needs, with the ultimate aim of reducing the global burden associated with FH.

Read more about the FHSC, the Registry and coordinating centers
and listen to interviews with scientific leads >>

FH Week - one voice on FH

During the past year, EAS has formed alliances with others in the FH community as part of an awareness-raising strategy. We have formed a partnership with FH Europe, the European network for FH patients and their families, to facilitate cooperation at a national level, supporting initiatives linking FH patient groups with expert clinicians, and sharing globally established best practices. Together the World Heart Federation and others in the FH community, we continue to engage EU and WHO policymakers in in-depth discussion to increase their level of awareness of FH.

Read more about the collaboration
and listen to interviews with patient organisation representatives >>

FH Data + global network + collaboration = FHSC

Current estimates suggest that one baby is born with FH every minute. If FH is identified early, ideally in children, and effective treatment initiated, individuals with FH can live long and healthy lives. With the new data from the EAS FHSC global registry, we have the scientific basis to identify and highlight the priority actions needed reduce the global burden untreated – or undertreated – FH. With the network of national coordinating centres, EAS FHSC is uniquely placed to implement best-practice treatment strategies globally, on a country-specific basis. And by collaborating with partners in the FH community, EAS FHSC reaches out in awareness campaigns directed towards patients, public and policy makers

#FHWeek - Join with us in sharing information about FH

 

During FH Week, a series of newsletters are going out to EAS members and stakeholders and FH related information is published daily in our social media channels. Follow us and share the information within your network. You find us on Facebook: @EuropeanAtherosclerosisSociety and on Twitter: FH global registry @fhglobal.

 

In our Youtube channel (European Atherosclerosis Society) you can find several video interviews with EAS FHSC Scientific Leads describing the EAS FH Studies Collaboration Registry and the National Lead Investigators and patient organisation representatives describing the situation in their respective country/region.

Read more about the collaboration >>

EAS recent and forthcoming FH-related events

2019

September 02-03

The first patient data analysis of the FHSC Registry was presented in a Late breaking session at the ESC Congress 2019 in Paris.

Read the report and listen to the interview with EAS FHSC representative Dr. Antonio Vallejo-Vaz >>

EAS joint session with ESC on Expert Advice - Premature cardiovascular events? Think familial hypercholesterolaemia

September 23-29

FH-week - EAS Newsletters and social media feed will highlight the activities and breaking new results from the EAS FH Studies Collaboration, and the collaboration with the patient organisation "FH Europe".

The FH Week awareness campaign will include interviews with National Lead Investigators within the EAS FH Studies Collaboration describing the currents situation for FH patients in their respective countries and what they gain from being part of the collaboration. As well as interviews with representatives from the patient organisations describing the situation and possibilities for patients in their respective countries.

During FH Week, a series of newsletters are going out to EAS members and stakeholders and FH related information is published daily in our social media channels. Follow us and help us sharing the information within your network. You find us at: @EuropeanAtherosclerosisSociety and on Twitter @society_eas, and FH global registry @fhglobal.

 

2020

May 31 EAS FHSC Steering Committee meeting, Geneva, Switzerland in conjunction with the EAS2020 Congress.
May 31 - June 03 FH sessions at EAS 2020, Geneva, Switzerland

 


EAS has developed educational activities and offers resources and tools to increase the knowledge and to raise awareness of FH. One of the educational activities offered, in addition to regular Advanced Courses on FH held around Europe, is an online learning programme EAS Certificate of Education in Familial Hypercholesterolaemia (FH).

EAS Certificate of Education in Familial Hypercholesterolaemia (FH)

This online learning programme on FH, is giving a broad overview of the genetic dyslipidaemia, Familial Hypercholesterolaemia (FH), with insight into the genetics of the disease, the basic molecular mechanisms, and its clinical development.

The course is suited to physicians who meet patients with FH, including those working in general practice, internal medicine, cardiology, endocrinology, diabetology and other.

Participants completing the requirements of the Programme will receive a Certificate of Excellence in Familial Hypercholesterolaemia (FH).


MORE ABOUT EAS AND FH

RECENT REPORTS AND INTERVIEWS

FH STUDIES COLLABORATION - A worldwide network on FH

FHSC - REGISTRY

FIND A FH CONTACT IN YOUR COUNTRY

SPECIAL CLINIC - REFERRAL CENTERS; Genetic testing for FH

FHSC COLLABORATION WITH FH EUROPE (Patient organisation network)

HICCS REGISTRY

FH WEEK NEWSLETTERS (Starting on September 23)

EAS - EDUCATION, RESOURCES AND TOOLS

EAS ACADEMY: Certificate of Excellence in FH, EAS Certificate in FH

EAS ACADEMY: Video presentations on FH

PUBLICATIONS

Membership Software Powered by YourMembership  ::  Legal