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FH week 2018

FH Week is an initative by the European Atherosclerosis Society, in cooperation with the FH Studies Collaboration.

FH Week 2018 and "Experts on FH" is a campaign to highlight the importance of a better understanding of Familial Hypercholesterolaemia (FH) and the need for action to improve management of this condition and improve the lives of patients.

When is FH Week?

EAS campaign "FH week" was established in 2015 and in 2018 the campaign will be on from September 19 until September 25. Although EAS has a special focus on FH, at this time every year, efforts to put FH on the public health agenda goes on throughout the year.

What is FH week about?

FH-week is an opportunity to coordinate activities to raise the awareness of the disorder Familial Hypercholesterolaemia, FH:

  • in healthcare professionals
  • in the general public
  • in policy makers at government level

Detecting more cases of FH, earlier, will reduce the risk of cardiovascular disease in people with FH.

Help us sharing information about FH

   

During FH Week, newsletters are going out every day to EAS members and stakeholders. FH related information is published daily - follow us and share the updates on EAS Facebook @EuropeanAtherosclerosisSociety and on Twitter, @society_eas, and FH global registry @fhglobal.

What is FH?

FH is short for Familial Hypercholesterolemia. It is an inherited disorder that causes abnormally high levels of blood cholesterol, leading to aggressive and premature cardiovascular disease, such as heart attacks & strokes.

It is estimated that 1 in 200-500 people, or between 14 and 34 million individuals worldwide have the disorder. Individuals with FH have a 20 times higher risk of heart disease. As the disorder is inherited, once one family member is found to have it, other family members could be tested (screened) to see whether they also have it.

Once diagnosed, FH can be treated, and the risk of serious problems of the heart can be reduced by taking cholesterol-lowering medication.

EAS FH Studies Collaboration initiative

Background

The consequences of FH in the form of premature atherosclerosis and cardiovascular events are potentially preventable, but require effective initiatives and policies to address the current issues and reduce the burden of disease.

To address these issues, FH investigators from all over the world have come together under the EAS FH Studies Collaboration (FHSC) since 2015, to initiate a global call to take action. EAS FHSC aims to raise awareness on the disease and encourage the development of programmes, initiatives and policies specifically focused on FH, by joining efforts from healthcare providers, patient organizations, policy makers and the entire medical community.

FHSC today

FH Studies Collaboration (FHSC) is already making a positive impact in the FH community with 84 contributing clinics, from 68 countries. The registry continues to grow through the combined efforts of the Coordinating Centre and all the participating investigators. As per Sept 2018, the FH Registry includes more than 11,000 cases from 25 countries in the world.

EAS forthcoming FH-related events

2018
September, 19-25
FH-week - EAS Newsletters and social media feed will highlight the activities with EAS FH Studies Collaboration, FH awareness day and other FH-related activites.
September Experts on FH, listen to interviews with National Lead Investigators within the EAS FH Studies Collaboration describing the currents situation for FH patients in their respective countries and what they gain from being part of the collaboration.
2019
May 5-8
FH sessions at EAS 2019, Maastricht, The Netherlands
May 8, 2018 EAS FHSC Steering Committee meeting, Maastricht, The Netherlands

 

National events on FH - to the list of events Worldwide >>

Around the world atherosclerosis societies, networks and FH patient organisations are holding events and activities to raise awareness of FH among the general public and healthcare professionals. The more people are aware of FH, the more likely we are to get FH onto the public health agenda.

We have listed some of the local and national events taking place before, during and after FH-week, September 19-25.

Is there an FH-related event happening near you? Let us know...

Help us share awareness of FH within the general population, healthcare providers and policy makers in your region by telling us about events and activities going on near you.

Send details of the event to: info@eas-fhsc.org – and we’ll post it on the EAS-FHSC website

EAS and FH education

EAS has developed educational activities and offers resources and tools to increase the knowledge and to raise awareness of FH. One of the educational activites offered, in addition to regular Advanced Courses on FH held around Europe, is an online EBAC accredited learning programme - EAS Certificate of Education in Familial Hypercholesterolaemia (FH).


EAS Certificate of Education in Familial Hypercholesterolaemia (FH)

This online learning programme on FH, is giving a broad overview of the genetic dyslipidaemia, Familial Hypercholesterolaemia (FH), with insight into the genetics of the disease, the basic molecular mechanisms, and its clinical development.

The course is suited to physicians who meet patients with FH, including those working in general practice, internal medicine, cardiology, endocrinology, diabetology and other.

Participants completing the requirements of the Programme will receive a Certificate of Excellence in Familial Hypercholesterolaemia (FH). The EAS Certificate of Excellence in FH is accredited by the European Board for Accreditation in Cardiology (EBAC) for 4 hours of External CME credits.

EAS - EDUCATION, RESOURCES AND TOOLS

EAS ACADEMY: Certificate of Excellence in FH, EAS Certificate in FH

EAS ACADEMY: Video presentations on FH and related topics (108)

FH SCORE APP

FH HANDBOOK: For Iphone & Ipad :: For Android phone :: For Android Tablet

PUBLICATIONS

UPCOMING FH EVENTS

MORE ABOUT EAS AND FH

EXPERTS ON FH - video interviews - available as of September 19

FHSC - A worldwide network on FH

FIND A FH CONTACT IN YOUR COUNTRY

HICCS REGISTRY

SPECIAL CLINIC - REFERRAL CENTERS; Genetic testing for FH

FH WEEK NEWSLETTERS - starting September 19



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