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FH Week 2019 - FHSC first registry data

Familial Hypercholesterolaemia Studies Collaboration (FHSC) - the only global registry on FH

On September 2nd, in a Late-breaking session at ESC Congress 2019 Paris, FHSC presented the first patient data from the European Atherosclerosis Society Familial Hypercholesterolaemia Studies Collaboration (FHSC), the only global registry on FH. The data highlight the need for more intensive therapy to reduce low-density lipoprotein cholesterol (LDL-C), ‘bad cholesterol‘, in people with FH.
You can read the report from the presentation and listen to the interview with author Dr. Vallejo-Vaz at ESC in Paris on these analysis.

To the report and interview with Dr. Vallejo-Vaz >>

First insights from the EAS Familial Hypercholesterolaemia Collaboration Registry: FH is still underdiagnosed and undertreated

The FHSC registry includes over 61,000 people with the common inherited high cholesterol disorder FH. Listen to some of the FH Lead Investigators discuss the status of FH care and new initiatives in FH that have been a direct consequence of participation in the FHSC Registry, recorded at the EAS 2019 Congress in Maastricht earlier this year.

To the video interviews with FHSC representatives about the Registry >>


#FHWeek - Join with us in sharing information about FH

 

During FH Week, a series of newsletters are going out to EAS members and stakeholders and FH related information is published daily in our social media channels. Follow us and share the information within your network. You find us on Facebook: @EuropeanAtherosclerosisSociety and on Twitter: FH global registry @fhglobal.

 

In our Youtube channel (European Atherosclerosis Society) you can find several video interviews with EAS FHSC Scientific Leads describing the EAS FH Studies Collaboration Registry and the National Lead Investigators and patient organisation representatives describing the situation in their respective country/region.


MORE ABOUT EAS AND FH

RECENT REPORTS AND INTERVIEWS

FH STUDIES COLLABORATION - A worldwide network on FH

FHSC - REGISTRY

FIND A FH CONTACT IN YOUR COUNTRY

SPECIAL CLINIC - REFERRAL CENTERS; Genetic testing for FH

FHSC COLLABORATION WITH FH EUROPE (Patient organisation network)

HICCS REGISTRY

#FH WEEK & NEWSLETTERS

EAS - EDUCATION, RESOURCES AND TOOLS

EAS ACADEMY: Certificate of Excellence in FH, EAS Certificate in FH

EAS ACADEMY: Video presentations on FH

PUBLICATIONS


 

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