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FH Week 2019 - Collaboration

One voice in Europe on FH

Most people who have FH do not know they have it. These people have inherited high cholesterol, and are at risk for premature atherosclerosis and early cardiovascular events that are often fatal. But if FH is identified early, and effective treatment begun, individuals with FH can live long and healthy lives.

In the beginning of 2019, a new partnership between Familial Hypercholesterolaemia (FH) patient representative network, FH Europe, and the FH investigators in FHSC was formed to work together on our common goals towards improving care for FH patients.

Through this collaboration FH Europe and the FHSC will speak with one voice on FH. By linking FH patient groups with expert clinicians from all over the world, we will share globally established best practices that will mean more persons with FH are identified early and, once they are identified, a smoother pathway for the patient to referral and potentially life-saving treatment in the clinic.

Read more about the partnership >>

Setting up an FH patient organisation differs between countries; representatives from FH Europe highlighted key approaches that have proved successful. Listen to some of the patient organisation representatives describing their situation and work in their respective countries.

To the report on "Improving FH care"
and the video interviews >>

#FHWeek - Join with us in sharing information about FH

 

During FH Week, a series of newsletters are going out to EAS members and stakeholders and FH related information is published daily in our social media channels. Follow us and share the information within your network. You find us on Facebook: @EuropeanAtherosclerosisSociety and on Twitter: FH global registry @fhglobal.

 

In our Youtube channel (European Atherosclerosis Society) you can find several video interviews with EAS FHSC Scientific Leads describing the EAS FH Studies Collaboration Registry and the National Lead Investigators and patient organisation representatives describing the situation in their respective country/region.

 


MORE ABOUT EAS AND FH

RECENT REPORTS AND INTERVIEWS

FH STUDIES COLLABORATION - A worldwide network on FH

FHSC - REGISTRY

FIND A FH CONTACT IN YOUR COUNTRY

SPECIAL CLINIC - REFERRAL CENTERS; Genetic testing for FH

FHSC COLLABORATION WITH FH EUROPE (Patient organisation network)

HICCS REGISTRY

#FHWEEK & NEWSLETTERS

EAS - EDUCATION, RESOURCES AND TOOLS

EAS ACADEMY: Certificate of Excellence in FH, EAS Certificate in FH

EAS ACADEMY: Video presentations on FH

PUBLICATIONS

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