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FH Week 2019 - Collaboration |
One voice in Europe on FHMost people who have FH do not know they have it. These people have inherited high cholesterol, and are at risk for premature atherosclerosis and early cardiovascular events that are often fatal. But if FH is identified early, and effective treatment begun, individuals with FH can live long and healthy lives. In the beginning of 2019, a new partnership between Familial Hypercholesterolaemia (FH) patient representative network, FH Europe, and the FH investigators in FHSC was formed to work together on our common goals towards improving care for FH patients. Through this collaboration FH Europe and the FHSC will speak with one voice on FH. By linking FH patient groups with expert clinicians from all over the world, we will share globally established best practices that will mean more persons with FH are identified early and, once they are identified, a smoother pathway for the patient to referral and potentially life-saving treatment in the clinic. Read more about the partnership >> Setting up an FH patient organisation differs between countries; representatives from FH Europe highlighted key approaches that have proved successful. Listen to some of the patient organisation representatives describing their situation and work in their respective countries. To the report on "Improving FH care" #FHWeek - Join with us in sharing information about FH
MORE ABOUT EAS AND FHFH STUDIES COLLABORATION - A worldwide network on FH FIND A FH CONTACT IN YOUR COUNTRY SPECIAL CLINIC - REFERRAL CENTERS; Genetic testing for FH FHSC COLLABORATION WITH FH EUROPE (Patient organisation network)
EAS - EDUCATION, RESOURCES AND TOOLSEAS ACADEMY: Certificate of Excellence in FH, EAS Certificate in FH |