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News: FHSC

Reports and video interview with FHSC representatives, EAS 2019 Maastricht

Wednesday 5 June 2019   (0 Comments)
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Maastricht welcomed over 2,000 delegates from 70 countries to the 87th Congress of the European Atherosclerosis Society (EAS), a reflection of the global presence of the Society.

The EAS Familial Hypercholesterolaemia Studies Collaboration (FHSC) is an important example of the Society’s global position in atherosclerosis research. Currently, 68 countries have entered 59,600 FH cases in this Registry. The EAS FH Studies Registry has recently announced a collaboration with the patient representative network, FH Europe, to ensure that there is now one voice for FH in Europe.

Read more in the reports and listen to experts discussing recent findings and activities aimed at establishing best practices in management and treatment of FH worldwide.

Read the report from one of the Late breaking abstract sessions at the Congress:
Failure to diagnose familial hypercholesterolaemia results in worse outcome >>

Interview with Professor Ray, Scientific leader of the FHSC, discussing the importance of early diagnosis of familial hypercholesterolemia:

News from the EAS FHSC global registry

Recent news from the EAS FHSC Registry has highlighted the extent of unmet needs in FH research and care, emphasising the importance of this initiative.

Listen to Dr. Antonio J. Vallejo-Vaz from the FHSC Co-ordinating Centre in Imperial College London, UK discussing the survey of FH status in more than 60 countries participating in the FHSC Registry:

A key outcome from participation in the FHSC Registry is that many countries have now initiated their own FH registries. Some of the FH Lead Investigators discuss the status of FH care and new initiatives in FH that have been a direct consequence of participation in the FHSC Registry:

Professor Derick Raal (University of the Witwatersrand, Johannesburg, South Africa discusses FIND FH – a programme designed to find black Africans with FH, a much neglected area of research.


Professor Winfried März (University of Heidelberg, Germany and University of Graz, Austria) discusses the CaReHigh FH Registry in Germany


Dr Meral Kayikcioglu (Ege University, İzmir, Turkey) discusses FH initiatives in Turkey


Professor Maciej Banach (Medical University of Lodz, Lodz, Poland) discusses the status of FH care in Poland



One voice in Europe on FH

Photo from the partnership representatives meeting in Maastricht, May 26, 2019 in conjunction with the EAS 2019 Congress

Earlier this year, the European Atherosclerosis Society initiative FH Studies Collaboration and the patients organisation network "FH Europe" announce partnership.

Through this collaboration FH Europe and the FHSC will speak withone voice on FH, and by linking FH patient groups with expert clinicians from all over the world, we will share globally established best practices that will mean more persons with FH are identified early and, once they are identified, a smoother pathway for the patient to referral and potentially life-saving treatment in the clinic.

Read about the partnership and the intentions with the collaboration >>



To FH related Consensus Papers :: EAS ACADEMY - Certificate in FH

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