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News: FHSC

Heads up! FH Week coming soon

Thursday 12 September 2019   (0 Comments)
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Focused around FH Awareness Day on September 24, EAS promotes the importance of wider understanding of Familial Hypercholesterolaemia (FH) in our FH Week campaign. Persons with FH are at risk for premature atherosclerosis and early cardiovascular events that are often fatal. Our aim is to highlight the extent of unmet needs in FH research and care - where urgent action could result in FH being identified early, effective treatment begun, and individuals with FH living long and healthy lives.

This year our focus is on EAS FH Studies Collaboration partnership with patient network FH Europe, speaking as one voice on FH in Europe, and the first analyses of the more than 61,000 cases in the FHSC Registry.

About FH Week

Since 2015, EAS and the initiative FH Studies Collaboration (FHSC) have joined with the wider FH community to focus attention on this potentially fatal disorder. Around the world during FH Week the global scientific and medical community of FHSC collaborators, as well as patient organisations, coordinate activities to raise the awareness of FH, and highlight the barriers to diagnosis and treatment.

Although EAS has a special focus on FH at this time of the year, efforts to put FH on the public health agenda go on throughout the year through the EAS FH Studies Collaboration. 

FH Studies Collaboration, recent reports & interviews >>

#FHWeek - Help us share information about FH

 

Share newsletters and FH related information published daily in our social media channels during FH Week.

Follow us and share! You find us at : @EuropeanAtherosclerosisSociety and on Twitter FH global registry: @fhglobal. Use #FHWeek

 

View and share video interviews with EAS FHSC Scientific Leads and patient organisation representatives on our Youtube channel

What is FH?

FH is short for Familial Hypercholesterolaemia. It is an inherited disorder that causes abnormally high levels of blood cholesterol, leading to aggressive and premature cardiovascular disease, such as heart attacks.

It is estimated that 1 in 200-500 people, or between 14 and 34 million individuals worldwide have the disorder. Individuals with FH have a 20 times higher risk of heart disease. As the disorder is inherited, once one family member is found to have it, other family members could be tested (screened) to see whether they also have it.

Once diagnosed, FH can be treated, and the risk of serious problems of the heart can be reduced by taking cholesterol-lowering medication.


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