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One voice in Europe on FH - EAS FHSC and FH Europe collaboration

Tuesday 26 March 2019   (0 Comments)
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The European Atherosclerosis Society FH Studies Collaboration and FH Europe announce partnership

We are excited to announce a new collaboration between Familial Hypercholesterolaemia (FH) patient representative network, FH Europe, and the FH investigators from all over the world who work together as part of the EAS FH Studies Collaboration (FHSC).

FH continues to be a major global health problem, very common — worldwide, one in every 200‑500 people has FH — yet widely underdiagnosed and undertreated. Most people who have FH do not know they have it. These people have inherited high cholesterol, and are at risk for premature atherosclerosis and early cardiovascular events that are often fatal. But if FH is identified early, and effective treatment begun, individuals with FH can live long and healthy lives.

Through this collaboration FH Europe and the FHSC will speak with one voice on FH, and by linking FH patient groups with expert clinicians from all over the world, we will share globally established best practices that will mean more persons with FH are identified early and, once they are identified, a smoother pathway for the patient to referral and potentially life-saving treatment in the clinic.

We will work together on our common goals towards improving care for FH patients: working within the FH community with initiatives reducing gaps in knowledge, informing best practice, assisting in clinical trials design, and supporting clinical guidelines and development of policies; reaching outside the FH community by raising awareness of the burden of FH among healthcare professionals and policy-makers, and advancing global public policy on FH.

Lale Tokgozoglu
President, EAS

Kausik Ray
FHSC Lead

Alberico L. Catapano
FHSC Co-lead

Jules Payne
Chair, FH Europe
   

                                                 

Read the full press release >>

Read more about EAS FH Studies Collaboration >>

Read more about FH Europe >>


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