FH Week #1 September 19, 2018
 

FH WEEK - Why is action needed? Experts on FH discuss challenges, goals and the impact of FHSC

In our series "Experts in FH", some of the FHSC's contributors from around the world discuss the challenges they face at a national level in the awareness and management of Familial Hypercholesterolaemia (FH), their goals in participating in this global collaboration, and the impact it has already made.

FH Studies Collaboration (FHSC) was inititatied by EAS in 2015, and is already making a positive impact in the FH community with 84 contributing clinics, from 68 countries. The registry continues to grow through the combined efforts of the Coordinating Centre and all the participating investigators. As per Sept 2018, the FH Registry includes more than 11,000 cases from 25 countries in the world.

FH Studies Collaboration - Clinicians working together for effective global management of FH

Professor Kausik Ray, Scientific Lead of the EAS FH Studies Collaboraion

As more data is collected, harmonized and analysed, the results will highlight where action can be taken - supporting clinicians to make early diagnoses and provide effective treatment of FH.

The mission of the FH Studies Collaboration is to empower the medical and global community to seek change in their respective countries or organisations regarding how FH is detected and managed with a view to promoting early diagnosis and more effective treatment of FH. Improvement of the management of this condition will improve the lives of patients and empower the medical community to achieve a global policy change.

Experts on FH: Why we joined the collaboration

National Leads on when they joined EAS FHSC, what they want to achieve and how it is going.

FH Studies Collaboration can offer country representatives:

  • support to establish or develop an FH registry in their country
  • inclusion in a global network of FH experts who share experience and information
  • participation in the EAS annual congress and focused FHSC meeting
  • information and eduational materials on FH
  • support to awareness-raising activities at national level among health care professionals and the wider scientific community

Listen to the Experts on FH - more Q&As >>
 Read more about the FHSC Registry >>
Is there a representative in my country? >>

MORE ABOUT EAS AND FH

ABOUT FH WEEK

EXPERTS ON FH - video interviews

FHSC - A worldwide network on FH

FIND A FH CONTACT IN YOUR COUNTRY

HICCS REGISTRY

SPECIAL CLINIC - REFERRAL CENTERS; Genetic testing for FH

FH WEEK NEWSLETTERS


EAS - EDUCATION, RESOURCES AND TOOLS

EAS ACADEMY: Certificate of Excellence in FH, EAS Certificate in FH

EAS ACADEMY: Video presentations on FH and related topics (108)

FH SCORE APP

FH HANDBOOK: For Iphone & Ipad :: For Android phone :: For Android Tablet

PUBLICATIONS

UPCOMING FH EVENTS

 

FH Week is an initative by the European Atherosclerosis Society, in cooperation with the FH Studies Collaboration.

FH Week 2018 and "Experts on FH" is a campaign to highlight the importance of a better understanding of Familial Hypercholesterolaemia (FH) and the need for action to improve management of this condition and improve the lives of patients. Although EAS has a special focus on FH this week, efforts to put FH on the public health agenda goes on throughout the year.


Find out more

About EAS

EAS Membership

EAS Congress

EAS Educational Initiatives

EAS Publications

European Lipoprotein Club (ELC)

EAS-FH Studies Collaboration (FHSC)

Visit: eas-society.org

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FH Week is an initative by the European Atherosclerosis Society. You have received this email because you are currently subscribed to receive general correspondence from EAS, either through membership, attending an EAS event, or registering to one of the Society’s educational activities.

  

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