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HoFH International Clinical Collaboration - HICC
The recently launched HoFH International Clinical Collaboration (HICC) registry aims to create a formal international network of healthcare providers who manage HoFH patients that transcends the regional nature of current efforts. The registry will allow collection of de-identified data relating to the clinical, genetic features and treatment of HoFH, with the goal to reach more than 500 HoFH patients. This will provide insight into the prevalence, clinical consequences and treatment of HoFH and promote actions to improve current approaches to diagnosis and therapy.
   HICC goal is to reach over 500 patients by the end of 2017

For more information, contact coordinator@eas-hicc.org

 

Consider joining the EAS-led HoFH International Clinical Collaboration (HICC) registry

Professor Derick Raal (University of the Witwatersrand, Johannesburg, South Africa) and Dr. Kees Hovingh (Academic Medical Center, Amsterdam, the Netherlands) discuss this critically important international HoFH registry, part of the EAS FH Studies Collaboration during the EAS 2017 Congress.

The key aims of this registry are to understand the prevalence, clinical consequences and treatment of HoFH with the ultimate aim of improving the diagnosis and care of this severe group.

For more information, contact coordinator@eas-hicc.org

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