|The recently launched HoFH International Clinical Collaboration (HICC) registry aims to create a formal international network of healthcare providers who manage HoFH patients that transcends the regional nature of current efforts. The registry will allow collection of de-identified data relating to the clinical, genetic features and treatment of HoFH, with the goal to reach more than 500 HoFH patients. This will provide insight into the prevalence, clinical consequences and treatment of HoFH and promote actions to improve current approaches to diagnosis and therapy.
|| HICC goal is to reach over 500 patients by the end of 2017
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