FH-awareness week #4 – Supporting FH patient groups, & the European FH Patient Network
24 September 2015
Today, September 24 is FH-awareness day. All this week we will focus on the disease Familial Hypercholesterolaemia (FH), aiming to increase the knowledge of this common inherited disease in both Europe and USA, and highlighting the great need for early detection and treatment.
EAS supporting FH patient representatives groups, & the European FH Patient Network
Patient Participation & Public Engagement in FH is one of the aims of the EAS-FH Studies Collaboration. EAS is pleased to collaborate with FH patient representative groups worldwide, and within Europe, with the European FH Patient Network. Our aims are to work together to raise awareness of FH, and to support activities to improve FH identification and research.
The European FH Patient Network was established in March 2015, a network of 19 country FH patient organisations and growing. The Network's aim is to identify all unidentified FH patients in Europe.
The Network will:
- provide support to new FH organisations
- meet to share best practice
- promote the Network at international health professional conferences to ensure the local health professionals are working with their local FH patient group
- lobby EU Commission in order to raise awareness of FH and prioritise FH in member states;
Find out more