Prague FHSC meeting April 26, 2017
Corinthia Towers Hotel, Prague, Czech Republic

PRELIMINARY PROGRAMME
   
12:45 - 13:30 Networking Lunch and registration at Corinthia Hotel
   
13:30 - 14:20 FIRST PART, UPDATES FROM THE COORDINATING CENTRE
Chair: Prof. K. Ray
  Welcome and introduction
Professor K.Ray
  Update from the coordinating centre:
Technical aspects
Mr. A. Akram
  Update from the coordinating centre:
Scientific aspects, running project and preliminary results based on available
Dr. A.J. Vallejo-Vaz
   
 14:25 - 15:45 INITIATIVES AND UPDATES FROM LEAD INVESTIGATORS, PART I
Chairs: Prof G. Watts and Prof P. Mata
  HoFH International Clinical Collaboration - HICC
Prof. K. Hovingh
  FH Paediatric Register
Prof. S. Humphries
  Initiatives from lead investigators:
  • Argentina, Dr. P. Corral (NLI Argentina)
  • Singapore, Prof. T. Subramaniam (NLI Singapore)
  • Gulf Region, Prof. K. Al-Rasadi (NLI Oman)
  • Greece, Prof. E. Leberopoulos (NLI Greece)
   
 15:45 - 16:15 Break & networking
   
 16:15 - 17:35 INITIATIVES AND UPDATES FROM LEAD INVESTIGATORS, PART II
Chairs: Dr. T. Freiberger and Prof. F. Raal
  Initiatives from lead investigators:
  • Belgium Prof. O. Descamps (NLI Belgium)
  • Japan, Prof. S. Yamashita (NLI Japan)
  • Turkey, Prof. M. Kayikcioglu (NLI Turkey)
  • Norway, Prof. M. P. Bogsrud (NLI Norway)
  • Slovenien, Prof. U. Groselj (NLI Slovenia)
   
 17:40 - 18:20 PATIENTS ORGANISATION, EAS AND OTHER INITIATIVES
Chair: Prof. A. Catapano
  European Patients Organisation
Mr. G. Karlsson
  EAS and EU initiatives
Prof. M. Banach
 18:20 - 18:30 Concluding remarks
Prof. K. Ray
   
 19:00 - ca. 22:00 Networking Dinner